steps for coco

In September 2021, our little girl Coco learnt take her first independent steps, something we were told was likely to never happen. We decided as a family to take a million steps, inspired by our little girl to raise awareness for STXBP1 and some much needed research funding.

You can see what we got up to here @a_million_steps_for_STXBP1

Coco’s Story