Our Foundation

The Australian STXBP1 Foundation was founded in 2023 by a group of families dedicated to raise money and accelerate research to find a cure for STXBP1 disorders. We are a 100% voluntary-run organisation thanks to the tireless efforts of our families, supporters and a committed Board. We are all tremendously proud to serve this organisation and are dedicated to working relentlessly on fulfilling its mission.

Registration with the Australian Charities and Not-for-profits Commission

100% Voluntary-run with DGR Status

STXBP1 Australia Limited is a not-for-profit charity which has been endorsed by the ATO as a Deductible Gift Recipient. 

Meet our Board Members

Benjamin Shipley
Alexanda Race

Manjula Kumar

Lauren Jensen
Research Lead

Angela Lucas
Fundraising Lead