![](https://stxbp1australia.org//wp-content/uploads/2023/10/anirudh-YQYacLW8o2U-unsplash-1-scaled-e1697802224197.jpg)
Our Foundation
The Australian STXBP1 Foundation was founded in 2023 by a group of families dedicated to raise money and accelerate research to find a cure for STXBP1 disorders. We are a 100% voluntary-run organisation thanks to the tireless efforts of our families, supporters and a committed Board. We are all tremendously proud to serve this organisation and are dedicated to working relentlessly on fulfilling its mission.
Registration with the Australian Charities and Not-for-profits Commission
100% Voluntary-run with DGR Status
STXBP1 Australia Limited is a not-for-profit charity which has been endorsed by the ATO as a Deductible Gift Recipient.
Meet our Board Members
![](https://stxbp1australia.org//wp-content/uploads/2023/09/ben.jpg)
Benjamin Shipley
Chairman
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Alexanda Race
Secretary
![](https://stxbp1australia.org//wp-content/uploads/2023/09/Manjula-Profile-Pict-cropped-scaled-e1697801913532-1024x1024.jpg)
Manjula Kumar
Treasurer
![](https://stxbp1australia.org//wp-content/uploads/2020/08/Pangolin_Associates_Lauren-Jensen-768x768-1.jpg)
Lauren Jensen
Research Lead
![](https://stxbp1australia.org//wp-content/uploads/2023/10/image001-e1697801802769.png)