Skip to content
STXBP1 Australia

Our Foundation

Our Foundation

STXBP1 Australia is a 100% voluntary-run, DGR-endorsed charity founded in 2023 by families dedicated to accelerating research into STXBP1 disorders. Meet our Board.

STXBP1 Australia parents and children, several in wheelchairs, together at a local playground.

STXBP1 Australia was founded in 2023 by a group of families dedicated to raising money and accelerating research to find a cure for STXBP1 disorders. We are a 100% voluntary-run organisation thanks to the tireless efforts of our families, supporters and a committed Board. We are all tremendously proud to serve this organisation and are dedicated to working relentlessly on fulfilling its mission.

100% voluntary-run with DGR status

STXBP1 Australia Limited is a not-for-profit charity, registered with the Australian Charities and Not-for-profits Commission, which has been endorsed by the ATO as a Deductible Gift Recipient.

Meet our Board members

Benjamin Shipley, Chairman.

Benjamin Shipley

Chairman

Alexandra Race, Secretary.

Alexandra Race

Secretary

Manjula Kumar, Treasurer.

Manjula Kumar

Treasurer

Lauren Jensen, Research Lead.

Lauren Jensen

Research Lead

Angela Lucas, Fundraising Lead.

Angela Lucas

Fundraising Lead

Stand with our families

We're 100% volunteer-run. Every dollar goes further, and all donations are tax-deductible.

Donate now