Privacy Policy

The Australian STXBP1 Foundation respects and upholds your rights to privacy protection under the National Privacy Principles contained in the Privacy Act 1988 and any similar state or territory legislation applicable to the STXBP1 Foundation’s operations.

This policy describes how we manage any personal information we have about you.

What personal information about me does the Australian STXBP1 Foundation hold?

STXBP1 Australia may hold your name, address, mobile number, email address, donation amount, products and/or services purchased and any additional information provided to us to assist in processing your order or subscription to our website.

We only keep donation information online on our website where such donations were made since the beginning of the previous calendar year.

If at any time you provide the personal information of another person to us then you must ensure that that person has read and understood this policy and separately consents to that personal information being used and disclosed by us for the above purposes.

What does STXBP1 Australia do with my personal information?

We use personal information about you to assist in processing your donation and for our internal administrative purposes of running the Foundation.

We utilise the newsletter service, Campaign Monitor, which also stores your name and email address (unless you’ve unsubscribed).

Other than as described above, STXBP1 Australia will not disclose personal information about you to any person except on a confidential basis to agents that we use in the ordinary operation of our charity, such as for data processing.


You may request access to personal information we hold about you by writing to STXBP1 Australia’s Privacy Officer at the address below.

Where we hold information that you are entitled to access, we will endeavour to provide you with a suitable range of choices as to how you access it (e.g. emailing or mailing it to you).

Any questions about this policy, or any complaint regarding treatment of your privacy by STXBP1 Australia, should also be made in writing to the address below.

Our contact details

STXBP1 Australia



In this policy “personal information” has the same meaning as under the Privacy Act. References to “STXBP1 Australia” are to STXBP1 Australia Limited (ACN 128 998 425), which has issued this policy.

This policy represents our policy as at August 2023. We may change this policy from time to time. Although we intend to observe this policy at all times, it is not legally binding on STXBP1 Australia in any way.

From time to time we may regard it as necessary or desirable to act outside the policy. STXBP1 Australia may do so, subject only to any statutory rights you have under the Privacy Act or other applicable legislation.